Throwing Spaghetti

Dear Addie,

*For the record I think you said this picture was a dinosaur lol

This week, you drew a picture that I’m starting to think might actually be a true depiction of your health journey map. We’ve continued to experience much of what has become our new “normal” — managing symptoms, meeting new doctors, hearing new theories, and, of course, drawing up, you guessed it, more new maps. Oddly enough this all reminds me of a saying people use about throwing spaghetti at the wall to see what sticks. Don’t worry, baby — we’re not actually tossing noodles around the house and even if we were our trusty beagle boy Finn would be right there being the biggest team player cleaning it all up. All that just means that when you have a lot of theories, you try them all and hope one of them finally sticks. Although, I will say at this point, I think we may need to try a new type of pasta, but I digress.

Not gonna lie, I am deeply frustrated and saddened that you’re still struggling and that we don’t yet have any concrete answers. But please don’t mistake my frustration for a loss of hope. We are more determined than ever to figure this out, and I know that before long, you’ll be back to flashing that infectious smile we all know and love. Until then, we’ll keep throwing spaghetti ;) surely something will stick soon.

Love you always,

Mom